Living with Scleroderma

26 Nov
November 26, 2015

I really appreciate this video from Jason Alexander (of Seinfeld fame) explaining Scleroderma and his family’s experience with it. It is an often times unrecognized and misunderstood disease. My son Noah was most likely born with localized scleroderma; we noticed symptoms we couldn’t explain by the time he was two years old, but it was another two years of constant doctors appointments with different specialist after specialist until someone finally figured it out – and that was only because they did a biopsy on part of the affected area of his face. Building awareness and understanding is important!

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