Scleroderma
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Living with Scleroderma
I really appreciate this video from Jason Alexander (of Seinfeld fame) explaining Scleroderma and his family’s experience with it. It is an often times unrecognized and misunderstood disease. My son Noah was most likely born with localized scleroderma; we noticed symptoms we couldn’t explain by the time he was two years old, but it was…
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Noah and Scleroderma
It’s been a while since I’ve posted an update on Noah and his battle with Scleroderma. You can find my previous posts/updates here. It’s starting to feel like we go through spells of very little to report … and then get slammed with waves of challenges. At the moment, it feels like a bit of…
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Living with Scleroderma
A great video on what life with Scleroderma is like. I think she does a powerful job of describing the disease in an understandable way, what it’s like going to doctors and them not knowing or recognizing it, and the realities of vital drugs with side effects that are brutal. The drug she mentions, methotrexate,…