I've blogged in the past about our son Noah's challenges. He has to have surgery every few years on his right eyelid because of a condition called Ptosis, for a while he had heart arrhythmia that required a lot of monitoring, and for the last few years he has been battling Scleroderma, a condition that affects his … Continue reading Noah’s new challenge
Category: Noah
Not what we hoped
It's been a while since I've blogged about our son, Noah, our five year old son. He's had a few extra challenges that our other kids don't have; Ptosis, Scleroderma, and for a while a heart arrhythmia. We had actually thought we were having a pretty good year. Over the summer of 2010 he had surgery … Continue reading Not what we hoped
Conversations with Noah
Noah, our four and a half year old, has been having a rough year. Between the visits to the doctor for his heart arrhythmia, the scleroderma morphia that covers his left eye down to the bottom of his nose and the treatments for it (it has virtually disappeared, but the treatments will go on for the … Continue reading Conversations with Noah
Noah’s updates
Well, it's been four days since Noah's surgery. The operation itself went as hoped with no complications. His eyelid is definitely in a better position than it was. However, I honestly don't remember him being so miserable when he had it done at 12 months old. The poor kid spend the first couple days basically … Continue reading Noah’s updates
The latest on Noah
I realized I haven't posted any updates on my four and a half year old son, Noah, lately ... so here we go! He's been on the medicine for the scleroderma for a few months now and it seems to be working well. Almost all of the redness has disappeared from his face, so the … Continue reading The latest on Noah
More Noah updates
I thought I'd blog the latest on Noah, our four year old with more than his share of issues! For the recaps, I blogged about the buildup to Noah’s biopsy here and here, and then I blogged here about the results. Since then we've spent a bunch of time talking to a bunch of specialists, and Noah … Continue reading More Noah updates
Noah’s biopsy results …
I'm not really sure why Noah, our four year old, is wearing a helmet ... although, it would probably be better for him if he wore one more often! I blogged about Noah's biopsy here and here for those who need a recap of the buildup to the biopsy. We got the results last week … Continue reading Noah’s biopsy results …
What a week!
This week has been an exhausting one ... Yesterday was Noah's biopsy. We ended up spending most of the day there, but he's a trooper and did awesome. He brought his teddy bear he made at Build-A-Bear on his birthday (named Noah Bear), so they both got wrist bands when we checked in. He also brought a … Continue reading What a week!
Noah’s looming biopsy
Noah is our four year old, number three of four boys. Next Wednesday he'll be going in for a biopsy - the poor kid is so used to going to the doctor it's not even phasing him (yet). When he was one he had to have surgery on his right eye; he has Ptosis, a … Continue reading Noah’s looming biopsy
Noah’s cardiologist visit
Poor Noah! The kid just can't win! When he was only a year and a half old he had to have surgery on his right eye because the lid was too droopy and could have seriously impacted his vision development. Then, a year or so ago, a funky rash looking thing appeared around his other … Continue reading Noah’s cardiologist visit